In the News
Keep up to date with the latest news articles from around the world.
Articles represent the views of their authors and not ME/CFS SA. Always seek advice from a registered health practitioner before changing your care plan.
12 April, 2024
'I Can't Walk, Talk Or Eat - Doctors Don't Believe What's Wrong With Me And I Think I'm Going To Die'
Millie McAinsh, an 18 year old girl who is hospitalised and unable to walk, talk or eat has been left in a state of constant fear, as she believes she may die soon due to doctors failing to acknowledge her condition - severe myalgic encephalomyelitis (ME).
11 April, 2024
She’s Lost Friends, A Job And Her Identity Over Long COVID. Will She Ever Be ‘Old Me’ Again?
Mary Eggert, 40, got Covid in July of 2022 and has never fully recovered. She's been suffering from Long Covid ever since. Her main symptoms are brain fog and chronic fatigue. She had to resign from her job as a physical therapist in 2023 and to this day spends a good part of each day either resting up to spend time with her family.
11 April, 2024
K-Pop Group Lapillus Member Chanty Announces Indefinite Hiatus From Group Activities Due To Chronic Fatigue Syndrome
Lapillus member Chanty has announced an indefinite hiatus from group promotions due to her chronic fatigue syndrome. On April 5 KST, MLD Entertainment released an official statement, updating fans on Chanty's health status. While Chanty will remain a member of Lapillus, she will not be able to participate in group activities due to concerns that intense physical activity may strain her health. She will focus on her individual promotions for the time being.
11 April, 2024
Epstein-Barr Virus Emerging As Possible Cause Of Chronic Pain
When most people hear about the Epstein-Barr virus (EBV), they may recall its reputation as the rather harmless "kissing disease" known as mononucleosis. To the surprise of many, this previously unheralded virus has recently emerged as a cause of some cancers and painful disorders. It is now clear that EBV must be contained and suppressed in order to relieve the pain and suffering of many persons with chronic pain. This column is an introduction to the critical involvement of EBV with several chronic pain conditions.
10 April, 2024
How The Isle Of Man's Specialised Service Is Helping Tackle Long Covid And ME
Manx residents living with illnesses such as Long Covid and ME have praised a specialised service dedicated to helping those with chronic fatigue syndromes. More than 1,000 are thought to be living with Long Covid in the Isle of Man, with 350 known to have Myalgic Encephalomyelitis (ME).
10 April, 2024
EXCLUSIVE: 'I Can't Walk, Talk Or Eat - Doctors Don't Believe What's Wrong With Me And I Think I'm Going To Die'
Millie McAinsh says she's 'constantly hurting' and claims doctors 'won't listen' to her wishes. The distressed teen is believed to be suffering with ME, a debilitating illness that is often misunderstood.
10 April, 2024
Longitudinal Cytokine And Multi-Modal Health Data Of An Extremely Severe ME/CFS Patient With HSD Reveals Insights Into Immunopathology, And Disease Severity
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) presents substantial challenges in patient care due to its intricate multisystem nature, comorbidities, and global prevalence. The heterogeneity among patient populations, coupled with the absence of FDA-approved diagnostics and therapeutics, further complicates research into disease etiology and patient management. Integrating longitudinal multi-omics data with clinical, health, textual, pharmaceutical, and nutraceutical data offers a promising avenue to address these complexities, aiding in the identification of underlying causes and providing insights into effective therapeutics and diagnostic strategies.
09 April, 2024
Chronic Fatigue Syndrome Isn't Just Misunderstood, It's Actively Neglected
Artist and musician Becca Thomas knew something was wrong when they went from working two jobs, making art, and exercising consistently to feeling winded from a single flight of stairs. It all started with a case of mononucleosis in 2017. "I never fully recovered after that and knew something was deeply wrong with my body," Thomas tells POPSUGAR, adding that it took four years to get any real answers. "In those four years I faced a lot of medical gaslighting and dismissal from negligent doctors."
09 April, 2024
Watch: Fermanagh Woman Bedridden For 12 Years Climbs Stairway To Heaven In ‘Emotional’ Challenge
An Irish woman left bedbound with ME/CFS for 12 years has said “there are no words” to describe how proud she is of everyone who helped her to climb the Stairway to Heaven in her home county.
09 April, 2024
Not In Your Head
Doctors sometimes dismiss physically sick patients with psychiatric diagnoses, entering errors into medical records that impede real treatment for years. Here’s how to protect yourself.
